Showing posts with label autism awareness. Show all posts
Showing posts with label autism awareness. Show all posts

Sunday, April 21, 2019

Preteen Emotional Roller Coaster | Raising the Boys


Stars, Stripes and Sarcasm




Walking this path we are on dealing with ADHD and Autism ... I feel like it's a mixture of rocky trail combined with soft sand. And sometimes, it feels like we are gliding through mud.

We think we are getting somewhere in our journey, but then there's a fork in the road and all of sudden we are forced to decide which way to go. One way leads to more yelling, more stress, more anger, more tantrums. The other way leads to more therapy, more visuals hung up around the house, more deep sighs and more walking away to cool off.


It doesn't seem like there's ever a right path to choose. There isn't room for error yet the whole experience is trail and error because there is no cure, there is no easy button and there definitely isn't a choice to leave the trail all together.

So what is a mom (parent) of a special needs child to do? Stick with those who understand and don't judge - which is easier said than done. BUT - that's what a parent needs to do. You'll always get people putting in their two cents about what you SHOULD be doing. But you know what, I don't care who you are. When you have an emotionally unbalanced preteen on your hands, all SHOULDS, WOULD OFS, and COULD OFS go flying out the window.


We are still trying to find a medicine concoction that will stabilize our son. We've tried many and still haven't seen the results we are looking for. Is it too much of what we are asking for? Or is this the route we take? Hormones and new meds, emotions and physical ailments. I mean, I know I was awkward as hell as a preteen ... but this, this is the worst!

My final goal (and this is mine alone) is for my son to be free of medications and have the ability to control his impulses and tantrums and emotions. Call it being a 12 year old, or a stubborn boy, but he seems to not use the tools we provide him to do so.

He's been through so many therapists that he knows how to play each and every one. He says what he's supposed to. He can recite everything that he's supposed to do. But does he do it? Nope.

How do we ensure our son's future if there is no motivation or "umph" for him to succeed as an adult?

Guys, give me the strength to survive these preteen ... and ugh, TEEN years with him. I know he is worth it. I know he can achieve great successes ... I just need that attitude and stubbornness to cease!


How do y'all survive the preteen/teen years?



Sunday, January 13, 2019

Dealing with Autism | Raising the Boys







Autism.

This is our life now. The meltdowns. The constant repeating of tasks. The continuous bickering of a too literal big brother and a little brother who just doesn’t care for facts.

This is us.

The chaos will always follow us. We will always come in full force and interrupt your quiet. I’ll always be the strict mom and I’ll always be the momma bear. 

My boxing gloves will always be on to fight for him at school and my apologies will come like second nature for behavior.

Little brother will always be the antagonizer - no matter what.

I’m not sure what little sister’s roll in this mess will be but I do know she’s teaching him responsibility and patience.

I know I haven’t blogged much about what’s going on in our family - I mean the holidays came fast and furious with lots of sugar, excitement and more stimulants then you can count.

We are exhausted.

Now with 2019 here and his 12th birthday behind us we I can refocus and blog/journal more about our experiences.



I finally bit the bullet and joined multiple autism support groups on Facebook. I wanted to see how others deal with this diagnoses but mostly I wanted to finally talk to people who understand. ADHD/High Functioning & Autism is a bitch. Mix in puberty and ohhhhh hell. 

Watch out. 

I don’t know what the diagnosis is and what puberty is. His actions are all over the place. He’s started to get more agitated and less patient to the unknown.

I learned the word “stemming” recently and boy, does that bring a lot more knowledge to what he does & why. Stemming is something an autistic person does to calm, concentrate, focus, and/or protect themselves when things get chaotic, too exciting, too scary, too boring etc.

My son has two types of stemming I’ve noticed so far - when frustrated he brings his hand to his head and squeezes (sorta like pulling his hair as well). And he also flaps his arms - he calls it dancing but to me is more like flapping. Before we would make him stop flapping because, well, it looks ridiculous. But now that I know what it is- we are trying to ignore it.

The squeezing of the head is a little more worrisome only because it sometimes involves him hitting his head on a wall or punching himself. Though, we don’t want him to hurt himself, it’s great to know why he is doing it so we can slow down and rethink how to approach him. 

The women I’ve talked to thru these Facebook groups (and close friends who are going through their own struggles) empathize and relate. They also bring up how they’ve dealt as well as sometimes tell me to suck it up because I was chosen to be his momma and no one else. And I love their tough love because well, autism is our life now.


Shirts by Sunshine & Spoons


Ready or not.

It won’t run us, but it will guide us.